Tweens to Teens Project at Penn State
Tweens to Teens Project at Penn StateStudy Type: Observational
Age/Gender Requirements: 10-13 years (female)
Sponsor: Penn State University
Purpose: Penn State researchers are recruiting 300 adolescent girls with 21-hydroxylase deficiency congenital adrenal hyperplasia (CAH) and the “parent, guardian, or significant caretaker of girls with CAH” to complete questions and submit to phone interviews. The girls will “answer questions about activities and interests, school, feelings about being a girl, stage of physical development, and family relationships during a home interview , provide saliva samples, and participate in phone interviews to answer questions about daily activities.” The adult cohort will “complete questionnaires about their daughter's activities, interests, and behaviors, educational goals, family demographics and relationships, grades, diagnosis and treatment of her CAH, their own activities, interests, and thoughts and feelings about being male or female. Parents answer questions during phone interviews about their daughters daily activities.”
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