The Sickle Cell Disease Patient Journey

A panel of experts and patients with sickle cell disease discuss the burden of sickle cell disease as well as the importance of education and awareness surrounding this disorder.

EP. 1: Patient and Caregiver Experience

June 11th 2021

Jamaal Bailey and his mother, Sherry Bailey, discuss their experiences with sickle cell disease, including the initial diagnosis of this disorder.

EP. 2: Overview and Burden of Sickle Cell Disease

June 11th 2021

An expert in sickle cell disease provides an overview of sickle cell disease and the ultimate burden that it has on patients. 

EP. 3: Lack of Awareness and Knowledge About SCD

June 11th 2021

Cassandra Trimnell, a patient advocate, explains the lack of public knowledge regarding sickle cell disease and how she creates awareness.  

EP. 4: Impact of Sickle Cell Disease on Everyday Life

June 11th 2021

A patient with sickle cell disease explains how growing up with the sickle cell disease has impacted his quality of life.

EP. 5: A Young Mother’s Journey With Sickle Cell Disease

June 11th 2021

Patient advocate, Cassandra Trimnell, talks about her experience of being a mother with sickle cell disease.

EP. 6: Pain Management With Sickle Cell Disease

June 11th 2021

Cassandra Trimnell, a patient advocate, narrates her experience in dealing with the physical and emotional pain of sickle cell disease and finding the beauty in living with the disorder.

EP. 7: Mental Health and Sickle Cell Disease

June 11th 2021

A discussion on the importance of mental health awareness and utilization of mental health resources in sickle cell disease, given the statistics of the disorder.

EP. 8: The Mental Health Journey With Sickle Cell Disease

June 11th 2021

A patient with SCD and his mother discuss their mental health journey with sickle cell disease and resources that helped them.

EP. 9: Building Relationships in the SCD Community

June 11th 2021

A patient advocate speaks about connecting with sickle cell disease communities to improve mental health and create disease awareness.

EP. 10: Evolution of Therapies in Sickle Cell Disease

June 11th 2021

Wally Smith, MD, reviews the goals of treatment and discusses current disease-modifying therapies for SCD.