NORD's Voice of the Community

January 11, 2019

Dipanjan Basu, PhD, is testing non-melanoma drugs, like the investigational therapy omipalisib (GSK2126458) in cultured patient cells.

October 20, 2018

Stay up-to-date on the latest rare disease news by reading the top 5 articles of the week.

September 01, 2018

In a recent webinar, geneticist Debra Regier, MD, provides an overview of the importance of genetic testing in the rare disease space.

June 12, 2018

e FDA grants Fast Track designation to 177Lu-lilotomab satetraxetan (Betalutin) for the treatment of patients with relapsed/refractory follicular lymphoma after at least 2 prior systemic therapies.

May 24, 2018

Congress has voted to pass the Right to Try bill which will provide terminally ill patients with the ability to seek out experimental therapies not yet approved by the FDA.

May 21, 2018

NORD's Voice of the Community - May 2018