The Sickle Cell Disease Patient Journey
Episodes
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EP. 1: Patient and Caregiver Experience By Ifeyinwa (Ify) Osunkwo, MD, MPH, Atrium Health, Wally Smith, MD, Virginia Commonwealth University , Jamaal Bailey, Sherry Bailey , Cassandra Trimnell, Patient Advocate, Sickle Cell 101 Jamaal Bailey and his mother, Sherry Bailey, discuss their experiences with sickle cell disease, including the initial diagnosis of this disorder.
EP. 2: Overview and Burden of Sickle Cell Disease By Ifeyinwa (Ify) Osunkwo, MD, MPH, Atrium Health, Wally Smith, MD, Virginia Commonwealth University , Jamaal Bailey, Sherry Bailey , Cassandra Trimnell, Patient Advocate, Sickle Cell 101 An expert in sickle cell disease provides an overview of sickle cell disease and the ultimate burden that it has on patients.
EP. 3: Lack of Awareness and Knowledge About SCD By Ifeyinwa (Ify) Osunkwo, MD, MPH, Atrium Health, Wally Smith, MD, Virginia Commonwealth University , Jamaal Bailey, Sherry Bailey , Cassandra Trimnell, Patient Advocate, Sickle Cell 101 Cassandra Trimnell, a patient advocate, explains the lack of public knowledge regarding sickle cell disease and how she creates awareness.
EP. 4: Impact of Sickle Cell Disease on Everyday Life By Ifeyinwa (Ify) Osunkwo, MD, MPH, Atrium Health, Wally Smith, MD, Virginia Commonwealth University , Jamaal Bailey, Sherry Bailey , Cassandra Trimnell, Patient Advocate, Sickle Cell 101 A patient with sickle cell disease explains how growing up with the sickle cell disease has impacted his quality of life.
EP. 5: A Young Mother’s Journey With Sickle Cell Disease By Ifeyinwa (Ify) Osunkwo, MD, MPH, Atrium Health, Wally Smith, MD, Virginia Commonwealth University , Jamaal Bailey, Sherry Bailey , Cassandra Trimnell, Patient Advocate, Sickle Cell 101 Patient advocate, Cassandra Trimnell, talks about her experience of being a mother with sickle cell disease.
EP. 6: Pain Management With Sickle Cell Disease By Ifeyinwa (Ify) Osunkwo, MD, MPH, Atrium Health, Wally Smith, MD, Virginia Commonwealth University , Jamaal Bailey, Sherry Bailey , Cassandra Trimnell, Patient Advocate, Sickle Cell 101 Cassandra Trimnell, a patient advocate, narrates her experience in dealing with the physical and emotional pain of sickle cell disease and finding the beauty in living with the disorder.
EP. 7: Mental Health and Sickle Cell Disease By Ifeyinwa (Ify) Osunkwo, MD, MPH, Atrium Health, Wally Smith, MD, Virginia Commonwealth University , Jamaal Bailey, Sherry Bailey , Cassandra Trimnell, Patient Advocate, Sickle Cell 101 A discussion on the importance of mental health awareness and utilization of mental health resources in sickle cell disease, given the statistics of the disorder.
EP. 8: The Mental Health Journey With Sickle Cell Disease By Ifeyinwa (Ify) Osunkwo, MD, MPH, Atrium Health, Wally Smith, MD, Virginia Commonwealth University , Jamaal Bailey, Sherry Bailey , Cassandra Trimnell, Patient Advocate, Sickle Cell 101 A patient with SCD and his mother discuss their mental health journey with sickle cell disease and resources that helped them.
EP. 9: Building Relationships in the SCD Community By Ifeyinwa (Ify) Osunkwo, MD, MPH, Atrium Health, Wally Smith, MD, Virginia Commonwealth University , Jamaal Bailey, Sherry Bailey , Cassandra Trimnell, Patient Advocate, Sickle Cell 101 A patient advocate speaks about connecting with sickle cell disease communities to improve mental health and create disease awareness.
EP. 10: Evolution of Therapies in Sickle Cell Disease By Ifeyinwa (Ify) Osunkwo, MD, MPH, Atrium Health, Wally Smith, MD, Virginia Commonwealth University , Jamaal Bailey, Sherry Bailey , Cassandra Trimnell, Patient Advocate, Sickle Cell 101 Wally Smith, MD, reviews the goals of treatment and discusses current disease-modifying therapies for SCD.
EP. 11: Patient Factors Associated With the Choice of SCD Therapy By Ifeyinwa (Ify) Osunkwo, MD, MPH, Atrium Health, Wally Smith, MD, Virginia Commonwealth University , Jamaal Bailey, Sherry Bailey , Cassandra Trimnell, Patient Advocate, Sickle Cell 101 Wally Smith, MD, discusses the mechanisms of actions of various therapies for SCD and the patient factors associated with the choice of therapy.
EP. 12: Patient Experience With Treatments for SCD By Ifeyinwa (Ify) Osunkwo, MD, MPH, Atrium Health, Wally Smith, MD, Virginia Commonwealth University , Jamaal Bailey, Sherry Bailey , Cassandra Trimnell, Patient Advocate, Sickle Cell 101 A patient with SCD and his caregiver share their experiences with the treatment options he received since the diagnosis.
EP. 13: Advocacy as Part of Sickle Cell Disease Management By Ifeyinwa (Ify) Osunkwo, MD, MPH, Atrium Health, Wally Smith, MD, Virginia Commonwealth University , Jamaal Bailey, Sherry Bailey , Cassandra Trimnell, Patient Advocate, Sickle Cell 101 A patient advocate for sickle cell disease explains how advocacy helps her to manage her disease and why she chooses to be an advocate and educate the sickle cell community.
EP. 14: Patient Advocacy and Education in SCD By Ifeyinwa (Ify) Osunkwo, MD, MPH, Atrium Health, Wally Smith, MD, Virginia Commonwealth University , Jamaal Bailey, Sherry Bailey , Cassandra Trimnell, Patient Advocate, Sickle Cell 101 Patient advocate, Cassandra Trimnell, shares her perspective on becoming an advocate for the sickle cell disease community and continuously learning about it.
EP. 15: Educating Patients With SCD About the Associated Pain and Anemia By Ifeyinwa (Ify) Osunkwo, MD, MPH, Atrium Health, Wally Smith, MD, Virginia Commonwealth University , Jamaal Bailey, Sherry Bailey , Cassandra Trimnell, Patient Advocate, Sickle Cell 101 A patient with SCD describes how connecting with others in the sickle cell community via social media has brought him comfort.
EP. 16: Advice for Patients With SCD and Their Caregivers By Ifeyinwa (Ify) Osunkwo, MD, MPH, Atrium Health, Wally Smith, MD, Virginia Commonwealth University , Jamaal Bailey, Sherry Bailey , Cassandra Trimnell, Patient Advocate, Sickle Cell 101 A patient, patient advocate, and caregiver provide advice to those in the sickle cell disease community based on their own experiences.
EP. 17: Physician Advice for Patients With SCD By Ifeyinwa (Ify) Osunkwo, MD, MPH, Atrium Health, Wally Smith, MD, Virginia Commonwealth University , Jamaal Bailey, Sherry Bailey , Cassandra Trimnell, Patient Advocate, Sickle Cell 101 Wally Smith, MD, shares his take-home points for patients with sickle cell disease and urges to get tested for sickle cell trait.
