The Sickle Cell Disease Patient Journey

Jamaal Bailey and his mother, Sherry Bailey, discuss their experiences with sickle cell disease, including the initial diagnosis of this disorder.

An expert in sickle cell disease provides an overview of sickle cell disease and the ultimate burden that it has on patients. 

Cassandra Trimnell, a patient advocate, explains the lack of public knowledge regarding sickle cell disease and how she creates awareness.  

A patient with sickle cell disease explains how growing up with the sickle cell disease has impacted his quality of life.

Patient advocate, Cassandra Trimnell, talks about her experience of being a mother with sickle cell disease.

Cassandra Trimnell, a patient advocate, narrates her experience in dealing with the physical and emotional pain of sickle cell disease and finding the beauty in living with the disorder.

A discussion on the importance of mental health awareness and utilization of mental health resources in sickle cell disease, given the statistics of the disorder.

A patient with SCD and his mother discuss their mental health journey with sickle cell disease and resources that helped them.

A patient advocate speaks about connecting with sickle cell disease communities to improve mental health and create disease awareness.

Wally Smith, MD, reviews the goals of treatment and discusses current disease-modifying therapies for SCD.

Wally Smith, MD, discusses the mechanisms of actions of various therapies for SCD and the patient factors associated with the choice of therapy.

A patient with SCD and his caregiver share their experiences with the treatment options he received since the diagnosis.

A patient advocate for sickle cell disease explains how advocacy helps her to manage her disease and why she chooses to be an advocate and educate the sickle cell community.

Patient advocate, Cassandra Trimnell, shares her perspective on becoming an advocate for the sickle cell disease community and continuously learning about it.

A patient with SCD describes how connecting with others in the sickle cell community via social media has brought him comfort.

A patient, patient advocate, and caregiver provide advice to those in the sickle cell disease community based on their own experiences.

Wally Smith, MD, shares his take-home points for patients with sickle cell disease and urges to get tested for sickle cell trait.