Sickle Cell Disease: Unmet Needs and Future Directions in Care
Concluding their discussion on sickle cell disease management, expert panelists share key unmet needs and hopes for the future.
Educating Patients on Gene Therapy in Sickle Cell Disease
Shared insight on patient education surrounding gene therapy in sickle cell disease and common misconceptions about this approach.
Understanding the Risk-Benefit Ratio of Gene Therapy in SCD
An overview of gene therapy in sickle cell disease with a focus on the risk-benefit ratio observed in clinical trials and practice.
Factors in Selecting Disease-Modifying Therapy in SCD
Panelists take a step back to consider when they might use certain disease-modifying therapy in the setting of sickle cell disease.
Sickle Cell Disease Management: Voxelotor Therapy
Considerations for voxelotor’s unique mechanism of action and prospective use in patients with sickle cell disease.
Crizanlizumab Use in Sickle Cell Disease
Panelists share their perspectives on the selection and use of crizanlizumab in certain patients with sickle cell disease.
Sickle Cell Disease Management: L-Glutamine Therapy
Shared insight on L-glutamine therapy in sickle cell disease, with deference to observed efficacy and safety considerations.
Hydroxyurea Use in Sickle Cell Disease
Expert perspectives on hydroxyurea as a staple therapy in the treatment armamentarium for sickle cell disease.
Treatment Goals and Guidelines in Sickle Cell Disease
Focusing on disease-modifying therapeutics, expert panelists discuss foundational treatment goals and guidelines for sickle cell disease.
Patient Follow-up and Pain Management in Sickle Cell Disease
Reflections on optimal approaches to patient follow-up, particularly regarding pain management and inherent risks in high-dose opioids.
Sickle Cell Disease: Applying Comprehensive Care to Patients
A focused discussion on how comprehensive care is applied by multidisciplinary teams to improve the management of sickle cell disease.
Sickle Cell Disease: Overview of the Comprehensive Care Team
A broad perspective on the value of multimodality care in the management of patients diagnosed with sickle cell disease.
Management of SCD: Educating Patients on Symptoms and Lifestyle Modification
Wally Smith, MD, and Payal Desai, MD, spearhead a discussion on patient education surrounding sickle cell disease symptomology and lifestyle modifications.
Sickle Cell Disease and Newborn Screening
Expert perspectives on the importance of newborn screening to impact mortality rates in sickle cell disease.
Sickle Cell Disease Global Prevalence
Expert panelists reflect on the global prevalence of sickle cell disease, as well as general disease awareness.
Progression of SCD and Management Throughout a Patient’s Life
Shared insight on how a patient’s life may progress following a diagnosis of sickle cell disease, along with considerations for pediatric versus adult management.
Overview of Sickle Cell Disease: Pathophysiology and Clinical Burden
An overview on the pathophysiology of sickle cell disease and expert perspectives on the clinical (and psychosocial) burden it presents.
Physician Advice for Patients With SCD
Wally Smith, MD, shares his take-home points for patients with sickle cell disease and urges to get tested for sickle cell trait.
Advice for Patients With SCD and Their Caregivers
A patient, patient advocate, and caregiver provide advice to those in the sickle cell disease community based on their own experiences.
Educating Patients With SCD About the Associated Pain and Anemia
A patient with SCD describes how connecting with others in the sickle cell community via social media has brought him comfort.
Patient Advocacy and Education in SCD
Patient advocate, Cassandra Trimnell, shares her perspective on becoming an advocate for the sickle cell disease community and continuously learning about it.
Advocacy as Part of Sickle Cell Disease Management
A patient advocate for sickle cell disease explains how advocacy helps her to manage her disease and why she chooses to be an advocate and educate the sickle cell community.
Patient Experience With Treatments for SCD
A patient with SCD and his caregiver share their experiences with the treatment options he received since the diagnosis.
Patient Factors Associated With the Choice of SCD Therapy
Wally Smith, MD, discusses the mechanisms of actions of various therapies for SCD and the patient factors associated with the choice of therapy.
Evolution of Therapies in Sickle Cell Disease
Wally Smith, MD, reviews the goals of treatment and discusses current disease-modifying therapies for SCD.
Building Relationships in the SCD Community
A patient advocate speaks about connecting with sickle cell disease communities to improve mental health and create disease awareness.
The Mental Health Journey With Sickle Cell Disease
A patient with SCD and his mother discuss their mental health journey with sickle cell disease and resources that helped them.
Mental Health and Sickle Cell Disease
A discussion on the importance of mental health awareness and utilization of mental health resources in sickle cell disease, given the statistics of the disorder.
Pain Management With Sickle Cell Disease
Cassandra Trimnell, a patient advocate, narrates her experience in dealing with the physical and emotional pain of sickle cell disease and finding the beauty in living with the disorder.
A Young Mother’s Journey With Sickle Cell Disease
Patient advocate, Cassandra Trimnell, talks about her experience of being a mother with sickle cell disease.
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