Sickle Cell

A patient with SCD and his mother discuss their mental health journey with sickle cell disease and resources that helped them.

A discussion on the importance of mental health awareness and utilization of mental health resources in sickle cell disease, given the statistics of the disorder.

Cassandra Trimnell, a patient advocate, narrates her experience in dealing with the physical and emotional pain of sickle cell disease and finding the beauty in living with the disorder.

Patient advocate, Cassandra Trimnell, talks about her experience of being a mother with sickle cell disease.

A patient with sickle cell disease explains how growing up with the sickle cell disease has impacted his quality of life.

Cassandra Trimnell, a patient advocate, explains the lack of public knowledge regarding sickle cell disease and how she creates awareness.  

An expert in sickle cell disease provides an overview of sickle cell disease and the ultimate burden that it has on patients. 

Jamaal Bailey and his mother, Sherry Bailey, discuss their experiences with sickle cell disease, including the initial diagnosis of this disorder.

COVID-19 severity should be looked at in the context of pre-existing comorbidities, age, social determinants, and bias among data sources.

The new indication for the therapy provides coverage for patients with the rare blood disease as young as 1 month old.

Michael R. DeBaun, MD, MPH, provides insight on the screening and monitoring procedure for red blood cell transfusion for the management of sickle cell disease.

Considerations for using HSCT (hematopoietic stem cell transplantation) in patients with sickle cell disease.

Treatment with plasminogen, human-tmvh was associated with improvements in existing lesions and prevention of new lesions in supporting data.

There are no guidelines on sickle cell patient referral to pulmonologists, associated outcomes, and best therapeutic interventions.

Resolution of iron deficiency was associated with lower mortality; however, mortality risk was similar following resolution of anemia.

Experts look into what is next for sickle cell disease and provide key thoughts on the space.

All patients with severe disease had abnormal ECG readings.

Assessing the role of voxelotor and crizanlizumab as agents for the management of sickle cell disease and the importance of shared-decision making between providers, patients, and caregivers.

Michael R. DeBaun, MD, MPH, reviews the use of crizanlizumab and its effect on vaso-occlusive crises and opioid use for pain management in patients with sickle cell disease as seen in the SUSTAIN trial.

Key opinion leaders dive into global challenges in sickle cell disease while focusing on treatment access.

A discussion of the course of gene therapy compared with stem cell therapy.

There was a notable association between the comorbid population and congestive heart failure exacerbations.

Social determinants can play a large role in hindering patient readiness for adult care.

CX-01 added to standard of care was well-tolerated and did not increase incidence of bleeding in patients >59 years old.

There was an association between exercise time and increased ejection fraction.